Undiagnosed Society is a nonprofit organization committed to raising awareness and providing support for individuals affected by Chronic Inflammatory Response Syndrome (CIRS)—a debilitating and often misunderstood illness that may impact up to 25% of the population. Despite its prevalence, CIRS remains largely unrecognized by mainstream medicine. We advocate for increased education, support, and compassionate care for those navigating life with this complex condition.
We hope to inspire and empower you to truly know your body and advocate for your wellbeing. That can feel like a daunting task—especially when mainstream society offers more skepticism than support. Whether you’ve been undiagnosed or misdiagnosed for decades or just a few days, when you know something is wrong, every moment matters.
You are not alone. You are important. And we are so glad you found US— Undiagnosed Society.
The Story Behind Our Mission: Undiagnosed
Our nonprofit was born from lived experience. In Undiagnosed: A Chronic Illness Memoir of Healing and Self Discovery, our founder chronicles her journey through chronic illness, medical uncertainty, and the search for answers in a system not built for complex cases.
Her story exposes the gaps in care while honoring the resilience of those who continue to seek healing despite dismissal or doubt.
We invite you to read the story that started it all — and join us in building a future where no one is left unseen or unheard.
