Welcome to Undiagnosed Society

Is your environment making you sick?

Water

Food

Clothes

Indoor Air Quality

Who We Are

Undiagnosed Society is a nonprofit organization committed to raising awareness and providing support for individuals affected by Chronic Inflammatory Response Syndrome (CIRS)—a debilitating and often misunderstood illness that may impact up to 25% of the population. Despite its prevalence, CIRS remains largely unrecognized by mainstream medicine. We advocate for increased education, support, and compassionate care for those navigating life with this complex condition.

We hope to inspire and empower you to truly know your body and advocate for your wellbeing. That can feel like a daunting task—especially when mainstream society offers more skepticism than support. Whether you’ve been undiagnosed or misdiagnosed for decades or just a few days, when you know something is wrong, every moment matters. You are not alone. You are important. And we are so glad you found US— Undiagnosed Society.

Quality of Life Scale

What level are you?

The array of symptoms associated with chronic illness is vast and unpredictable, posing challenges in accurately estimating the extent of undiagnosed cases. It's imperative for US to illuminate the hidden struggles endured by countless individuals. By raising awareness, we can bring about meaningful change in the lives of those impacted. Read each description then submit the number that best represents how you feel.

LEVEL 1: This is the most common type of undiagnosed living. The symptoms are mild or you may have one issue that presents more often or frequently. Level 1 daily life is you're not sick, but you know something is off. You can't complain because everyone you know also has "something.”
LEVEL 2: All of the symptoms from level 1, only a bit turned up. You don't consider yourself sick but you're disrupted more frequently with health concerns than you'd prefer. Doctors prescribe pills, but they only mask symptoms, and cause some other unpleasant side effects.
LEVEL 3: This is where things turn chronic. There are all the symptoms of 1 and 2—but you also notice other glaring aches and pains. Your friends and coworkers label you as “always sick." You have tried every doctor and have turned to alternative therapies and deep dives on the internet to prove you're not losing your mind. You haven’t found an answer and are worried you may never have a day without health interruptions again.
LEVEL 4: You've accepted there is something deeply wrong—you're getting worse and growing concerned that no doctor has come up with a viable diagnosis or solution. You need more sick days from work than you're allowed. The alternative therapies help sometimes, but you're running out of money and sanity as nothing works consistently. You feel isolated from your friends and family who don't understand what you're going through and you've been told to get a psychiatrist more than once.
LEVEL 5: Daily existence is pure torture. There is no quality of life as most days are spent horizontal. You're out of work and deeply demoralized. Your mind feels possessed and your body has been hijacked. There’s no sympathy from others because some days you don’t even look sick. Some days death feels like your only option to end the suffering.

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